Autism diagnosis and impact: in their own words

Background: A range of possible reactions to an autism diagnosis have been suggested, with psychological ramifications range from potential improvements in self-esteem (Whitaker, 2006), through to suicidal feelings (MacLeod and Johnston, 2007). Research related to good practice in supporting young people to understand their diagnosis is scarce (National Institute for Health and Clinical Excellence, 2011).

Methods: As part of a larger mixed methods study underpinned by a critical realist perspective (McEvoy and Richards, 2006), qualitative responses from an online survey from seven young people with autism were analysed using systematic narrative analysis.

Conclusion: Participants revealed influences that link with disability discourses, intertwined with social experiences, which could negatively impact upon self-efficacy. Greater consideration from the perspective of young people with autism into the processes surrounding diagnosis is required.

Outcome: Understanding the impact upon young people could contribute to the planning of approaches, strategies and dialogues that might be employed in future.