Experiences of Cancer and Cancer Care Amongst Ethnically Minoritised Young People in the UK

Objectives Research has highlighted poorer experiences of cancer care amongst ethnically minoritised groups. Whilst significant strides have been made in understanding cancer experiences of minoritised adults, there exists a knowledge gap in understanding how cancer impacts on minoritised young people, many of whom are faced with complex developmental challenges. This study aimed to understand the experiences of cancer and cancer care amongst minoritised youths in the UK. Method Nine young people aged between 16 to 24 with diverse types of cancer diagnoses, who self-identified as ethnically minoritised shared their cancer experiences in semi-structured interviews. Participants’ stories were analysed using thematic narrative analysis. Results Findings identified three core narratives reflecting participants’ emotional journey through cancer, their cultural stories and cancer care experiences, encompassing 12 themes. Their journeys shared common themes of: Feeling Dismissed; Shock and Turmoil; Grieving Self and Changes; Isolated and Helpless; Adapting in Adversity; and “Changed for the better”. Cultural narratives revealed diverging views towards family support, while cultural influences on treatment options and feelings of being othered also complicated their cancer experiences. Overall, participants shared positive experiences of cancer care. Despite a protracted journey to diagnosis, personalised, accessible care and experiences of feeling seen were valued. Conclusion The findings shed light on cultural influences towards minoritised young people’s experiences of cancer and care. Implications around strengthening cultural sensitivity and visibility were highlighted. Future research may be helpful to hone into minoritised cancer experiences at different stages during one’s cancer journey including survivorship across more diverse socio-cultural contexts and how systemic factors may impact on the provision of culturally competent care.