Getting back to life after stroke: co-designing a peer-led coaching intervention to enable stroke survivors to rebuild a meaningful life after stroke

Purpose: Rebuilding one’s life after stroke is a key priority persistently identified by patients yet professionally led interventions have little impact. This co-design study constructs and tests a novel peer-led
coaching intervention to improve post-stroke leisure and general social participation.
Methods: This study followed the principles of co-design by actively engaging and harnessing the knowledge of stroke survivors in order to develop and test a peer-lead coaching intervention. Phase 1 assessed
function, mood, and involvement in leisure and social activities 6 months following stroke (n ¼ 79). Phase
2 involved semi-structured, in-depth interviews with 18 stroke survivors, and 10 family carers to explore
experiences related to social and leisure participation. Phase 3 tested the co-designed peer-led coaching
intervention. Data collected also included co-design feedback sessions and a training workshop with
selected peer coaches and in addition, interviews with stroke survivors and their peer coaches at two
time-points: following the training program (n ¼ 5) and delivery of the intervention (n ¼ 2).
Results: A peer-coaching intervention was successfully co-designed and tested combining the use of lay
knowledge sociocognitive and self-regulatory theories with principles of transformational leadership theory. Both peers and stroke survivors reported having benefited at a personal level.
Conclusions: This study reports on an innovative community-based and peer-led intervention and its
results have generated new evidence on how stroke survivors engage with and respond to peer coaching
support. It further provides a theoretical platform for designing and implementing peer interventions.
Hence, these results have the potential to inform the development of future peer coaching intervention
not only for stroke rehabilitation but also for a wide range of chronic conditions.
IMPLICATIONS FOR REHABILITATION
The results of this co-design study, if replicated and extended, provide a theoretical framework to
guide rehabilitation professionals about the optimal timing of peer-coaching interventions and contextual factors that need to be taken into account.
Applying transformational leadership theory principles to the training of peers may prove useful at
the time of the implementation of a coaching intervention.
Peer-led coaching interventions, which are community-based and tailored to stroke survivors at the
time of discharge, may help support re-engagement in social and leisure activities.